Table 2 Components of a quality comprehensive care NICU follow-up program

Personnel

• A multidisciplinary team with adequate staffing from physicians, psychologists, nurses, social workers, physical, occupational, speech, and respiratory therapists, nutritionists, lactation consultants, case managers, and ECI collaborators

• Support for case management and home visits

Practices

• A standardized manual of operations

• Processes to engage effectively with neonatologists, community pediatricians, and other primary care providers including data sharing linkages

• Mechanisms for tracking during and after clinic discharge, including follow-up at school age, adolescence, and adulthood

• Databases for tracking and research

Programs

• Family support groups

• Organized educational program for outreach to families, providers, and community

• Website with resources for families, providers, and community

Facilities

• Appropriate clinic space